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Pre-conference Workshop 1

Patient and Caregiver Partnership in Education and Research: Why, What, and How. From Theory to Practice

Thursday, 14 May, 14:00 - 17:00

  • Prof. Alain Mercier, University Paris 13, Bobigny Department of General Practice, France
    GP and has been performing and teaching qualitative research for many years..
  • Prof. Maria Stella Padula, University of Modena, Italy 
  • Dott. Lorenzo Poli, University of Modena, Italy 

Foreword
The healthcare system is currently facing major transformations that are redefining the patient's role within its reorganization. By transitioning from a recipient of care to an active participant in their own health, individuals play an increasingly vital role in maintaining and improving their well-being.

The evolving needs of both patients and healthcare providers, coupled with increased life expectancy, a rise in chronic and dependent patients, and higher expectations from families, pose significant challenges for governments and healthcare organizations in managing hospital and community-based care. This situation necessitates a paradigm shift involving patients and caregivers within care pathways. This includes adapting education and research for both patients and professionals in universities and general training programs, as well as fostering peer-to-peer support and developing Therapeutic Patient Education for prevention and self-management in chronic conditions.

Objective
To raise awareness among General Practitioners regarding existing models for training health science professionals through the involvement of patients and caregivers. This initiative, based on experiences in Europe, France, and Italy, utilizes a presentation of current practices and a brief theoretical-practical session (simulations) to propose a research path focused on teaching effectiveness.

Program

  1. 30’ - Introductory Report (Italy+France): The institutional and organizational framework. A presentation of Italian and French experiences: the current teaching model (content, methodology, target audience and documentation).
  2. 60’ - Education in partnership with patients and caregivers in Italy (Italy):

A simulation of university training activities involving "patient trainers." The session focuses on medical students and the communication of diagnosis and prognosis.

    • Narratives. Perspectives from a patient, a caregiver, and a professional. Selection of a critical/problematic situation encountered by the three actors.
    • Facilitated interaction with participants, focusing on the following questions:
      • What are the unique aspects of this experience, and what are the specific needs of patients, caregivers, and professionals?
      • What lived experiences, emotions, and care-related questions did the simulation evoke?
      • What effective best practices were demonstrated in the stories shared by the narrators?
      • What are the implications for interprofessional collaboration?
    • Conclusion: Key takeaways from clinical, relational, and care management perspectives.
  2. 75’ - Education and research in partnership with patients in France (France):
    • Ongoing experiences in patient-inclusive education: Presentation of an educational simulation followed by a facilitated interaction with participants, with a focus on the unique aspects of the experience.
    • Report on research into the effectiveness of education with patients: Findings and implications of studies conducted in France.
  3. 15’ - Conclusion (France+Italy):
    • Future research directions in Medical Education
    • A Collaborative Future: Building a European Network between General Practitioners and Patients/Caregivers as Trainers and Co-researchers